Leave Them Laughing
I'm going to quote Carla for the next bit...she says it better in a recent email than I could:
I'm writing you after a short stay in the hospital where I discovered something distressing about ALS. I know you're probably thinking "What isn't distressing about ALS?" and you'd be right. I discovered how unknown ALS is even to health professionals. Of all the paramedics, firemen, nurses, and nurses' aides I met last week, NONE OF THEM had heard of ALS.One way that Carla is doing that raising awareness is through the calendar she has shepherded into being. Carla rallied a group of folks with ALS and put together the Aways Looking Sexy 2010 calendar. You can read about it here and buy it here.
This is a problem.
It made me think about my son's frequent lament that the reason ALS awareness is so important is not because it's the worst disease and not because people are inherently more worthy of awareness when they have ALS, but because AIDS and cancer have 100% awareness and ALS didn't even hit 10% in a frickin' hospital.
Therefore, I have made it a goal in the months I have left on this planet to get 10,000 people that don't know about ALS to learn about it.
You can also learn more about Carla and her journey on her blog and from the musical comedy documentary about her, "Leave Them Laughing". Yes, that's right, she's the subject of a musical comedy documentary about her living and dying...that's Carla.
This post is part of the Moms' 30-Minute-Blog Challenge over at SteadyMom. It took the whole 30 minutes...but not more!